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dc.contributor.authorElissa, Kawther
dc.contributor.authorSparud-Lundin, Carina
dc.contributor.authorAxelsson, Åsa B.
dc.contributor.authorKhatib, Salam
dc.contributor.authorBratt, Ewa-Lena
dc.date.accessioned2019-11-06T13:41:49Z
dc.date.available2019-11-06T13:41:49Z
dc.date.issued2018-11-27
dc.identifier.issn1552-549X
dc.identifier.urihttps://dspace.alquds.edu/handle/20.500.12213/4884
dc.description.abstractAdvances in early diagnosis, treatment, and postoperative care have resulted in increased survival rates among children with congenital heart disease (CHD). Research focus has shifted from survival to long-term follow-up, well-being, daily life experiences, and psychosocial consequences. This study explored the everyday experiences of children with CHD and of their parents living in the Palestinian West Bank. Interviews with nine children aged 8 to 18 years with CHD and nine parents were analyzed using content analysis. The overall theme that emerged was facing and managing challenges, consisting of four themes: sociocultural burden and finding comfort, physical and external limitations, self-perception and concerns about not standing out, and limitations in access to health care due to the political situation. To provide optimum care for children with CHD and their parents, health care providers and policy makers must understand the negative consequences associated with sociocultural conditions and beliefs about chronic illness.en_US
dc.description.sponsorshipAcknowledgments We would like to thank all of the participants of this research. It was their willingness to share their experiences and insights that made this study possible. Funding The authors received no financial support for the research, authorship, and/or publication of this article.en_US
dc.language.isoenen_US
dc.subjectadolescenten_US
dc.subjectchilden_US
dc.subjectcongenital heart diseaseen_US
dc.subjectparentsen_US
dc.subjectPalestinianen_US
dc.subjectqualitativeen_US
dc.titleStruggling and Overcoming Daily Life Barriers Among Children With Congenital Heart Disease and Their Parents in the West Bank, Palestineen_US
dc.typeArticleen_US


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